Project/Alive Executive Director Kristin McKay stated: “Raising awareness and funding is very personal for me. My brother Zachary had Hunter Syndrome. He passed away in 2015 at the age of 19. This painful awareness alerted me to the elusive early detection. My beautiful son Charlie is a spark of life and happiness. He’s currently 4 ½ years old. Charlie has Hunter Syndrome.”
Kristin McKay, Executive Director of Project Alive
