Category: Projects

The UCLA Technical Development Group (TDG) hired Ileana International to bring awareness to LABEST. This is a bioscience summit created to make Los Angeles a respected market for bioscience innovations.  These two stories, one in Spanish and one English explain the program wonderfully.

Project/Alive Executive Director Kristin McKay stated: “Raising awareness and funding is very personal for me. My brother Zachary had Hunter Syndrome. He passed away in 2015 at the age of 19. This painful awareness alerted me to the elusive early detection. My beautiful son Charlie is a spark of life and happiness. He’s currently 4 ½ years old. Charlie has Hunter Syndrome.”

Hunter Syndrome is caused by a deficiency of the enzyme iduronate-2-sulfatase, which is crucial for breaking down complex molecules in the body. This deficiency leads to the accumulation of substances called glycosaminoglycans in various tissues and organs, resulting in a wide range of physical and cognitive symptoms.

Children born with Hunter Syndrome often appear healthy at birth, but as the disorder progresses, they may experience a variety of challenges, including coarse facial features, joint stiffness, organ enlargement, heart problems, respiratory issues, hearing loss, and developmental delays. The severity of symptoms can vary widely, making early diagnosis and intervention critical for providing affected individuals with the best possible quality of life.

Part of being a publicist is finding the narrative which appeals to a journalist. Gerri Constant of KCAL/KCBS really gravitated towards the education aspect of Scorpius Space Launch. We accommodated and were rewarded with this terrific news piece.